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KMID : 1011220140010010010
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Clinical & Experimental Thrombosis and Hemostasis
2014 Volume.1 No. 1 p.10 ~ p.16
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Assessment of the Quality of Life in Korean Hemophiliacs: Impact of Disease-Related Factors, Social Status and Treatment Factors on the Quality of Life of Korean Hemophiliacs
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Hwang Joon-Ho
Park Youn-Jong
You Chur-Woo
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Abstract
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Purpose: The identification of disease-related factors, treatment factors and the social status of hemophiliac patients which may have an impact on their QoL in each country, is vital in establishing potential intervention strategies for these patients. For this reason, we evaluated the impact of these factors on the QoL of Korean hemophiliac patients.
Methods: QoL was evaluated using the SF36 standardized questionnaires. Disease-related factors were obtained from the patients’ medical records. Socio-demographic data, such as marital status, occupational status, education years, as well as a treatment data, self-injection ability were obtained using questionnaires. Correlation analysis and multiple regression analysis were conducted to elucidate the impact of the observed data on the QoL of these patients.
Results: The disease-related factors were correlated with physical health of the patients. Marital status was the only social status shown to have a correlation with the QoL of the hemophiliac patients; marital status was shown to only affect patients’ physical health. However, self-injection ability, the only treatment factor surveyed in this study, was significantly associated with both the physical and mental health of the patients. Mental health was revealed to be poorer in Korean hemophiliac patients when compared with that of patients residing in countries with well-organized hemophilia treatment systems.
Conclusion: One social factor (marital status) and the disease-related factors correlated with the physical health of the Korean hemophiliac patients. Self-injection ability was associated with both the physical and mental health of the patients. The differences in treatment factors across different countries may contribute to the difference in the physical and mental health of hemophiliac patients.
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KEYWORD
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Quality of life, Hemophilia, Social status, Treatment factor
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